Hi all, this week she's been so so. Felt nauseous last week, she's had increased breakthrough pain. She and my aunt will discuss it with the doctor tomorrow and I'll post an update.
Otherwise she's doing fabulous. We had a little party for Sujon and she was up and about in the kitchen. It makes her feel really happy to see people.
Thursday, September 23, 2010
Friday, September 3, 2010
Cycle 8, round 2
Hi everyone, just to give you all an update that mom is doing great.
No changes in her disease as shown in the CT scans.
We are all very happy to hear this news.
No changes in her disease as shown in the CT scans.
We are all very happy to hear this news.
Monday, July 12, 2010
Cycle 6 Round 2 Coming Up
EUS was not necessary, thank God. Doctor is happy with the progress.
I will write more after the appointment this Friday. She is due for her third (I think) CT scan August 9th. I shall definitely update the family and friends after that. Sorry I haven't posted much but yet again, no news is good news.
We did enjoy a family picnic in Newton Center to celebrate my aunt and Daniel's birthday. There was a mariachi band and dancing and singing. We ate Mexican food and Parveen's friend joined us.
It was something different from our usual cook-eat-clean routine at home.
So all in all, mom is consistently going out and enjoying life.
I will write more after the appointment this Friday. She is due for her third (I think) CT scan August 9th. I shall definitely update the family and friends after that. Sorry I haven't posted much but yet again, no news is good news.
We did enjoy a family picnic in Newton Center to celebrate my aunt and Daniel's birthday. There was a mariachi band and dancing and singing. We ate Mexican food and Parveen's friend joined us.
It was something different from our usual cook-eat-clean routine at home.
So all in all, mom is consistently going out and enjoying life.
Sunday, June 13, 2010
Round 2 Cycle 5
Routine visit. Mom's pain is returning a little bit, she's needed to take morphine more for her breakthrough pain. Dr. A thinks she's due for another EUS procedure to do a Celiac Nerve Block.
We celebrated Sabir's 3rd birthday which was great. She helped a lot with the prep so today she (along with the rest of the family) were pretty beat. It was worth it though, thank you to all those who came out.
Found a venue for the wedding so we have to take mom out to see the place. That'll make her very happy.
That's all for now. More details to come regarding the EUS.
We celebrated Sabir's 3rd birthday which was great. She helped a lot with the prep so today she (along with the rest of the family) were pretty beat. It was worth it though, thank you to all those who came out.
Found a venue for the wedding so we have to take mom out to see the place. That'll make her very happy.
That's all for now. More details to come regarding the EUS.
Friday, June 4, 2010
Round 1 Cycle 5
Yesterday mom began her fifth cycle of chemo. The appointment went well, her nurse practitioner Nina was very happy to see my mom wearing her hair down.
Memorial Day Weekend she went out with the family to a few parties. It is so nice to see her wearing pretty saris, going out, seeing people. Everyone's been so happy to see her!
They've set her up with appointment all the way into July which is good.
I think it is a good thing that you guys don't hear from me as often. hahaha.
The month of June brings three birthdays: Sabir's 3rd, Parveen, and Dan all share the same birthday month.
Tomorrow we are attending a wedding. I don't think mom is comfortable going to the wedding but she did attend the traditional tumeric ceremony. The bride was so happy to see my mom, she gave her a big hug. Though mom did not get up and dance she said she enjoyed watching me make a fool of myself.
I will update periodically as needed but just know that she is doing well, inshallah.
Memorial Day Weekend she went out with the family to a few parties. It is so nice to see her wearing pretty saris, going out, seeing people. Everyone's been so happy to see her!
They've set her up with appointment all the way into July which is good.
I think it is a good thing that you guys don't hear from me as often. hahaha.
The month of June brings three birthdays: Sabir's 3rd, Parveen, and Dan all share the same birthday month.
Tomorrow we are attending a wedding. I don't think mom is comfortable going to the wedding but she did attend the traditional tumeric ceremony. The bride was so happy to see my mom, she gave her a big hug. Though mom did not get up and dance she said she enjoyed watching me make a fool of myself.
I will update periodically as needed but just know that she is doing well, inshallah.
Tuesday, May 18, 2010
Meeting with Radiation oncologist
Today we met with the radiation guy. He was an hour late. Parveen, my aunt and myself were there--full house.
He said what we already knew/suspected and what Dr. A said.
Radiation will/may do more harm than help. The pancreas is sandwiched behind the stomach and small bowel so that causes more nausea when the beams go through those organs.
Radiation only adds a few months to ones life anyway...so no. He said he's available in the background and meets with Dr. A regularly. He's the "aggressive treatment" guy.
If ever we get to a point where chemo etc. doesn't work, he's there.
Oh well. At least we looked at yet another option.
He said what we already knew/suspected and what Dr. A said.
Radiation will/may do more harm than help. The pancreas is sandwiched behind the stomach and small bowel so that causes more nausea when the beams go through those organs.
Radiation only adds a few months to ones life anyway...so no. He said he's available in the background and meets with Dr. A regularly. He's the "aggressive treatment" guy.
If ever we get to a point where chemo etc. doesn't work, he's there.
Oh well. At least we looked at yet another option.
Saturday, May 15, 2010
Round 2 Cycle 4
Hello everyone, short update. Mom is doing well, no swelling of her feet after chemo this Friday.
We're awaiting an appointment with the radiation oncologist this Tuesday. Parveen is going with mom.
Since the tumor showed no change but no new sites of disease they may try using both methods to combat her disease/manage it.
Dr. A did mention that radiation makes people sick and I wouldn't want that, the family also agrees. She is doing well with chemo, household chores, cooking rice, laundry. We are content with this increase in quality of life. We want to keep it this way.
But Dr. A didn't want us to think he isn't doing everything he can and that he's keeping options from us so that is why the trip to the radiation doc was booked.
If anyone has read any good papers or studies on radiation and its benefits to PC patients, please feel free to e-mail them to me.
Goodnight.
We're awaiting an appointment with the radiation oncologist this Tuesday. Parveen is going with mom.
Since the tumor showed no change but no new sites of disease they may try using both methods to combat her disease/manage it.
Dr. A did mention that radiation makes people sick and I wouldn't want that, the family also agrees. She is doing well with chemo, household chores, cooking rice, laundry. We are content with this increase in quality of life. We want to keep it this way.
But Dr. A didn't want us to think he isn't doing everything he can and that he's keeping options from us so that is why the trip to the radiation doc was booked.
If anyone has read any good papers or studies on radiation and its benefits to PC patients, please feel free to e-mail them to me.
Goodnight.
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